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2012 Gold Medal Winner, Florida Publishers Association, Self-Help Category



Why do people love firemen? People love firemen because when
everyone else is running out of a burning building, they’re running
in. It’s easier to run away. Caregivers are running into the burning
building. Other people care, but they don’t know what to do, so
they run away.

―Chuck’s mother


No first-time caregiver should face cancer caregiving without this book in hand. It offers keys to unlocking the dilemmas of cancer
caregiving so you can take charge  as a knowledgeable advocate for
your patient.

This book is the first to capture the thoughts, feelings, and insights
of cancer caregivers on a large scale. Things I Wish I’d Known shares what 95 interviewees and dozens of others who were consulted informally wish they had known at the outset of their caregiving journeys.

In this book, practical lessons drawn from caregivers’ experiences are intermingled with their own words and most intimate feelings to forge a compelling narrative about the full range of issues you’ll face as caregiver or patient.

The lessons provide building blocks on which you can rely as you participate in decision-making and plan for the future.

You will learn about caregiver considerations in:

       Getting a clear diagnosis

       Gathering information

       Choosing treatment partners

       Making treatment decisions (including complementary and 
          alternative treatments and palliative care)

       Getting inside the caregiver role

       Accessing available resources (including clinical trials)

       Managing financial and legal issues

       Seeking normalcy during treatment

       Confronting issues facing families with children 
          (children in a household with cancer, and children as patients)

       Managing caregiver emotions and health

       Nearing life’s end

       Preparing for the aftermath (including how caregivers heal)

       Anticipating how cancer changes caregivers