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August 3, 2017

Palliative Care Nurses: Gotta Love 'Em

Palliative care is a distinct medical specialty that helps patients and families from the moment of diagnosis. It is intended to foster quality of life and relief from pain, nausea, anxiety, and other side-effects of serious illness and aggressive medical treatments. The people who provide such care are special, with the ability to demonstrate compassion and caring day after day in circumstances that most of us can't imagine. Frequently a care dog is also part of the palliative care team, providing cuddles and comfort for patients and family members and for nursing professionals, who are under constant stress.

Typical medical school curricula don't necessarily train physicians in the techniques of palliative care, so if you're experiencing a serious cancer episode, it's important to ask for a palliative care expert to be added to your treatment team. Palliative care can be provided from the day of diagnosis.

If you're curious how palliative care nurses approach their roles, take a look at this article What's It Like to Be a Palliative Care Nurse? We are all fortunate that such people exist.

Legislation has been introduced on Congress called the Palliative Care and Hospice Education and Training Act (PCHETA) that will provide additional training resources. The American Cancer Society's Cancer Action Network is advocating to build support for this bill, which has a small price tag but a big impact for those coping with the impact of serious illnesses. If you'd like to contact your Congressional Representative or Senator about supporting the bill, you can go to https://www.govtrack.us/congress/members and enter the name of your state to get their contact information. They need to hear from you!

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June 7, 2017

Metastatic Breast Cancer: Hope on the Horizon

Metastatic breast cancer is breast cancer that has advanced to its most serious stage (Stage IV) and has spread to distant parts of the body, most commonly liver, bones, lungs, and brain. Often when a breast cancer spreads to another organ, the cancer cells in the new location maintain the genetic characteristics of the original breast cancer. They remain breast cancer, and not liver, bone, or another type of cancer. Over time, in spite of chemotherapy and other whole body treatments, random cancer cells can occasionally evade treatment, stop growing temporarily, and reactivate later. They may also develop resistance to treatments being used and require the patient to try one or more new ones. A metastatic cancer Stage IV) cancer diagnosis usually represents the start of a lifelong battle to control disease spread while seeking to maintain a high quality of life.

On June 7, 2017, the New York Times reported that despite the increasing incidence of metastatic breast cancer, especially among young women, and despite the progressive and incurable nature of the disease, five-year survival rates have doubled over the past 20 years. An analysis in the professional journal Cancer Epidemiology, Biomarkers and Prevention attributes this progress to both improved imaging techniques (earlier detection) and improved therapies as genetic markers are being used more actively in matching each patient to the treatment that is most appropriate to their particular situation. 

This doesn't mean it's time to declare victory, but it does mean that for those women and men who are living with metastatic breast cancer, there is increasing hope of living with rather than dying from cancer.

 

 

 

 

 

 

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May 10, 2017

Making the Healthcare Debate Understandable: Implications of Different Types of Insurance (Parts 3 and 4)

Healthcare and healthcare insurance are critically important to each of us, so I've been writing community education articles to help laymen understand the implications of the "debate" that's underway at the national level.

The third chapter of my healthcare information series, discussing different types of healthcare insurance options, is available at

http://www.huffingtonpost.com/entry/590c7b5ee4b0f71180724398http://www.huffingtonpost.com/entry/what-health-insurance-options-might-exist_us_

The last chapter, Part Four, deals with a comparison of single-payer vs. private insurance and highlights the potential economic implications of that choice, as it's being considered in different states right now:

http://www.huffingtonpost.com/entry/590c7b5ee4b0f71180724398

I hope these are useful to my readers.

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April 27, 2017

ACA Purpose and Protections (Part Two of a Four-Part Series, Making the Healthcare Debate Understandable)

The second part of my community education series about the highly politicized healthcare debate (more like a fight now that we're on the second round of bad bills) is now available on Huffington Post. It addresses the protections built into the ACA that are at risk. This bill is dangerous for anyone who does or will face cancer, and we must band together to stop it.

Please contact your members of Congress to ask them to vote NO on the new AHCA bill if and when it comes up for a vote. Giving states the right to deny coverage for pre-existing conditions or to allow insurance companies to raise premiums for the millions of people with pre-existing conditions could put insurance coverage out of reach for cancer patients. We must stand with and protect each other. The link is at http://www.huffingtonpost.com/entry/59011258e4b00acb75f18465.

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April 19, 2017

Making the Healthcare Debate Understandable (Part One)

Today I published on Huffington Post the first of a series of articles about the current healthcare debate, trying to educate the public about what it's really about. I had the support of a number of healthcare professionals who are part of a healthcare issues community activism team. I'm hoping it will help you understand the issues behind the nationwide debate and to bring them home to their impacts for you.

http://www.huffingtonpost.com/entry/making-the-healthcare-debate-understandable_us_58f7d306e4b01d4eb1e168e4

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March 27, 2017

Federal Budget "Outline" Could Devastate Cancer Research Budgets

Just as we all thought we were making significant progress in advancing cancer research and improving the odds of survival for thousands of patients, the Federal Budget "outline" is threatening to take $5.8 billion out of the research budget of the National Institutes of Health. The impact of the potential cuts is described in a March 16 press release from the American Association for Cancer Research:

AACR Strongly Opposes the Draconian Cuts to Medical Research Proposed in President Trump’s FY 2018 Budget

3/16/2017

​PHILADELPHIA - On behalf of the entire cancer research community, the American Association for Cancer Research (AACR) was shocked to learn that the Trump administration is proposing to cut $5.8 billion from the National Institutes of Health (NIH) budget in fiscal year (FY) 2018.  At a time when extraordinary progress is being made against cancer and many other diseases, these draconian cuts would set research back for decades and also threaten the careers of an entire generation of young investigators working in labs and clinics all over the country who are committed to improving public health and saving lives. 

Therefore, we call on members of Congress to stand firmly against this budget proposal. We urge them to maintain the momentum they initiated in FY 2016 when they provided the NIH with a $2 billion funding increase so as to ensure that medical research remains a national priority. Providing robust, sustained, and predictable annual funding increases for the NIH is absolutely required for the benefit of cancer patients nationwide. Since today’s budget proposal by the Trump administration will severely jeopardize the progress we are making in preventing, treating, and curing cancer, the proposal must be stopped in its tracks.

Similar statements have been issued by the American Society of Clinical Oncology, American Society of Hematology, Society of Gynecologic Oncology, and the Cancer Action Network (the advocacy affiliate for the American Cancer Society). The last link, to the Cancer Action Network (CAN), takes you to a page where you can send an easy letter to your representatives and senators, based on your zip code; they will be delivered to them personally by CAN representatives in Washington. Such cuts are a mistake are urged to contact their legislators to tell them that there is no sense in investing in  "hard power" if we don't protect the lives of our citizens. Contact information for Representatives and Senators is easy to access. The staff member who answers the phone will take down your name and address and record the call. Feel free to share your personal story. The calls and stories make a difference, and if we speak out together, we may be able to change the budget outcome.
 
 
 
 

 

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March 13, 2017

Debunking "Alternative" Cancer Treatments

My latest Hufington Post blogpost adresses the differences among standard, alternative, and complementary therapies. It's important to understand that fear of cancer treatment's nasty side effects may steer a patient stray, into "alternatives" that don't help manage the disease in a productive way. If you're considering alternatives to traditional medicinal treatments, you might want to take a look so you can weigh the potential risks with the potential gains.

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March 11, 2017

Metastases May Start Even Before Primary Tumors can be Detected

A news report in STAT in December 2016 shared some shocking but important news: That some cancers have begun to  metastasize--that is, to shed cells that go to other body parts--even before the primary tumor is detectable. The report stems from studies that have been underway since 2008 to explore the molecular mechanisms that spur tumor growth and cancer cell proliferation. According to the article, this is most common in breast, melanoma, and pancreatic and pancreatic cancerss. They call into question the "non-invasive" diagnosis that many of us receive through early detection and may hgihlight the need for more basic research into the ways in which cancer cells grow, proliferate, and spread through the body. In this article, several prestigious experts praise the research done to date, but the implications are as yet unclear.

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March 1, 2017

Affordable Care Act: Critical Patient Protections

I've just had an Op Ed piece published in a number of Gatehouse Media community newspapers to help educate the public about the patient protections that are at risk if the Affordable Care Act is repealed without thorough deliberation about the impact repeal will have on people with cancer and other serious conditions. For those living on limited incomes, tax credits and health savings accounts will make it more difficult to obtain aequate health insurance. In addition, high risk pools will make insurance more expensive for anyone with a pre-existing condition (nearly half of the population).

I couldn't cover all of the concerns associated with repeal in my Op Ed, but you'll see the patient protection ones in the link provided above. If you're concerned to preserve patient protedtions or have a perosnal sotry about how the Affordable Care Act has affected you or your family, please use these phone lists to contact your Senators or members of Congress. The aides who answer the phone will log in your name, your city or town, and your position on the issue. Remember, there is power in numbers, and your story is as important as anyone else's.

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February 9, 2017

World Cancer Day

Even though dramatic progress is being made in understanding and fighting cancer in North America, cancer remains a scourge worldwide, especially in less developed and poorer countries. The Cancer Knowledge Network, based in Canada, is a very useful resource on such topics, especially for cancer in kids and young adults.

I was invited to contribute articles for World Cancer Day, February 4.  Those four articles provide insights about efforts to scope and locate the cancer problem, scientific developments to solve it, resources and support needed by the scientific community, and what the public needs to know about cancer.

If you're interested in learning more about global cancer, these articles provide insights about the strong best practices sharing that's going on across national borders.
 

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January 20, 2017

FDA Issues Proposed Rule to Limit Known Carcinogen in Smokeless Tobacco Products

An ACS Cancer Action Network press release reads as follows (direct quote):

WASHINGTON, DC – January 19, 2017 – Today, the Food and Drug Administration (FDA) issued a proposed rule to limit N-nitrosonornicotine (NNN), a known carcinogen, in smokeless tobacco products. This is the first time FDA has used its authority to require a standard for tobacco products. Under this authority, the FDA can require changes to tobacco products, such as removal of harmful ingredients, elimination of flavors, or reduction of nicotine levels, in order to protect public health.

A statement from Chris Hansen, president of the American Cancer Society Cancer Action Network (ACS CAN), follows:

“We applaud the FDA for taking the first necessary step to limit a cancer-causing agent found in smokeless tobacco products.  

“The dangers of smokeless tobacco are severe. Smokeless tobacco use is responsible for an estimated 1,600 new cases of oral cancer, 200 cases of esophageal cancer and 500 cases of pancreatic cancer in the U.S. each year. In addition to cancer, smokeless tobacco users have an increased risk of death from heart disease and stroke.

“ACS CAN strongly supports the FDA’s implementation of this rule, which over a 20-year period would prevent nearly 13,000 new oral cancer diagnoses and prevent 2,220 oral cancer deaths.

“We encourage the FDA to take the necessary actions to finalize this rule and protect the public’s health from the dangers of tobacco.”

Advocacy on this issue has helped move the ball forward. You can join the Cancer Action Network and get your voice heard at www.acscan.org.

Posted by david on 02-03-2017
useful information
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January 20, 2017

Moonshot Deliverable: FDA Oncology Center of Excellence

StatNews reports this morning that the FDA Oncology Center of Excellence, a major initiative othe Cancer Moonshot initiative, has just been launched. It creates a clinical review system for drugs, biologics, and medical devices to accelerate bringing safe and effective products into cancer care more quickly. This offers promise for the longer term.

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January 19, 2017

Learning about experimental treatments

An interesting article in Statnews today highlights the challenge facing both physicians and cancer patients in learning about available experimental treatments. At the same time that patients are dying before finding an appropriate experimental treatment, many clinical trials are cancelled because they couldn't recruit enough patients that qualified. In part, it's because so few people apply, and in part it's because they don't learn enough about the qualifications and potential benefits in time to apply.

If you're facing such a dilemma, you might want to read this story.

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January 11, 2017

A Final Gift from Joe Biden: NCI Formulary

This morning, the National Cancer Institute announced an agreement between NCI and six drug companies (more in negotiations to be added) to create an NCI Formulary that will help accelerate getting new cancer treatments from investigators' labs into clinical trials more quickly. The goal is for NCI to serve as an intermediary to make it faster to explore combination therapies, which are currently getting a lot of attention as potential new directions for treatment. Negotiations are underway right now regarding 15 therapeutic agents from these six companies and with many more companies to add many more agents to the Formulary. At a time when advocates have been pressing for more Federal funding for cancer research, this initiative (an offshoot of the Cancer Moonshot) is promising. The particular focus is on investigator-initiated studies, which often lack sufficient financial support to prove the merits of new treatments and understanding of new cancer signalling pathways. As the Formulary proves itself, it will become easier to gain the participation of more pharmaceutical companies and to move more combination therapies through the research pipeline.

Signs of hope.

 

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January 7, 2017

We're Learning from Mice How to Beat Cancer

My most recent Huffington Post article helps reveal how leading researchers are learning from Mice about chemo resistance and cancer's microenvironment. It offers promise for more effective personalized treatments. I found it fascinating to tour Dr. Dan Duda's lab at the Steele Laboratories at Mass General Hospital. You too might find it fascinating to read of their work. 

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January 6, 2017

Sharing Genomic Data will Advance Cancer Research and Treatment Efficacy

The American Association for Cancer Research (AACR) has just released its first set of data from AACR Project Genomics Evidence Neoplasia Information Exchange (GENIE), including de-identified genomic and clinical data from the medical records of over 19,000 patients and 59 cancer types. The data, which maintain patients' personal confidentiality, were drawn from eight major participating cancer centers worldwide. The data will be available to researchers and clinicians to help them discern correlations between genomic information and clinical activities and outcomes. This project reflects the growing trend of using "big data" analysis capabilities (the ability to digest and draw practical meaning and action implications from massive volumes of data) to help in diagnosis and treatment decisions for individual patients.

Within the cancer research and clinical communities, numerous similar data bank initiatives are underway. As such initiatives continue to grow, they offer promise to accelerate both research discovery and personalized medicine for improved clinical outcomes. 

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January 5, 2017

Joe Biden Creating a New "Moonshot" Nonprofit

According to the  Washington Post, the Cancer Moonshot's champion won't be leaving the cancer cause behind when he leaves Washington. This is a blessing for all of us who have valued his contributions to our shared mission. Thanks, Joe!
 
 
 
 
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December 20, 2016

Concern is Rising about Kids and E-Cigarettes

Use of e-cigarettes by children, adolescents, and young adults has risen at a "staggering" rate since 2010, when it was rare. This has driven the nation's Surgeon General to declare a public health emergency and to call for both increased FDA regulation and increased legislative action at state and local levels to include e-cigarette and other nicotine products ini tobacco control laws and programs. Public advocacy may be needed as regulatory modifications are proposed for legislative action. Each of us can speak out to help prevent this predictable public health crisis.

If you're concerned to learn more, check out the article in MedPage Today.

 

 

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December 1, 2016

No Cut-Off Age for Mammography Benefits

A study released at the Radiological Society of North America (RSNA) 2016 Annual Meeting on November 28, 2016, reports that despite past recommendations by the US  Preventive Services Task Force (USPSTF) that women undergo screening every 2 years only until age 74, analysis of mammography results in older women demonstrate conclusively the benefits of continuing screening as long as women have a life expectancy of at least 5-7 years and are willing to take appropriate action based on the test's results. The study was described in written up in the Medscape medical newsletter on Decemer 1, 2016. 

 

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November 29, 2016

An Amazing New Diagnostic Test for CML, and Pharma Generosity!

A New York Times article was published on November 28 about students at Fred Hutchinson Cancer Center in Seattle discovering a new way of diagnosing CML with a spot of blood on a piece of special paper. It's a fascinating tribute to the creativity of young investigators who are inspired by the lack of limits on what can be done to solve a scientific problem with a little ingenuity. Fascinating reading, and another inspirational tidbit for investing in the research work of young investigators. To do more of that, donate to the research programs of the American Cancer Society at www.cancer.org. Together we can save lives and create jobs.
 

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November 13, 2016

Open Letter to the President-Elect: Save Lives While Creating Jobs

Just posted on Huffington Post is my article on why increasing Federal cancer research funding should be an important priority on the President-Elect's leadership agenda. Take a look, and if you like it, please click "like" and share it on your social media feeds. We can make this a priority if enough of us speak out.

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November 4, 2016

Family Cancer Caregivers: “CHIN Up” for Coping

Just posted on Huffington Post is my article on cancer caregiving. May we all learn from each others' experiences.

 

 

 

 

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November 1, 2016

No Surprise: Smoke Still Kills

Despite the number of states that have passed legislation to restrict indoor smoking, the proportion of cancers caused by smoking and second-hand smoke is still stunning. According to the Journal of the AMA (JAMA), quoted in the New York Times on November 1:

"A new study has found that 28.6 percent of all cancer deaths in the United States are attributable to cigarette smoking.

Researchers calculated the number using the relative risks for 12 smoking-related cancers, including acute myeloid leukemia, mouth cancers, and those of the esophagus, stomach and colon.

Smoking is involved in 22.9 percent of cancer deaths in women and 33.7 percent in men. In all, the authors estimate that 167,133 people died of cancers associated with smoking cigarettes in 2014. (This number does not include deaths from many other diseases linked to smoking.)"

So far, over 8 million lives have been saved by these laws, but clearly more work is needed to control tobacco use in ways that will save more lives.

 

 

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October 21, 2016

Learn the Positions of Presidential Candidates on Cancer Issues

It's up to each of us to make it clear to all political candidates that cancer issues influence our decisions when we cast our votes in November.

Every four years, the American Cancer Society's Cancer Action Network asks each presidential candidate about their positions on government support for cancer early detection and research programs. If you want to know where the presidential candidates stand these issues, go to http://www.cancervotes.org/guides/national/president.  Cancer has been under the radar in the campaigns, so hopefully this nonpartisan survey will provide some new information about where the candidates stand on issues like funding for the Moonshot and for cancer research that m eans so much to many of us.

Posted by Smithk648 on 10-26-2016
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October 18, 2016

FDA is Waking Up to Rare and Pediatric Diseases

The Food and Drug Administration (FDA) has just announced that it has awarded $23 million for 21 grants that will mobilize clinical trials to accelerate treatments for rare diseases, working through the Orphan Products Clinical Trials Grants Program. The program funded 31% of the proposals it received. Its focus was consistent with the National Cancer Moon shot initiative in its intent to accelerate research progress.

"24 percent of the new grant awards fund studies enrolling patients with cancer; 40 percent of these [cancer] studies target devastating forms of brain cancer, one of which recruits children with recurrent or progressive malignant brain tumors. 43 percent of this year’s awards fund studies that enroll pediatric patients as young as newborns. Of these, two focus on research in transplantation and related issues."

These studies range over time periods of 1-4 years and range in type from Phase 1 to Phase 3 clinical trials. For those who have been confronted by rare or pediatric cancers, these studies may offer new potential therapies.

 

 

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